Family Advisory Network (FAN) Mail!

Nanfi

Did you miss the May FAN Webinar?

On May 21st Ms. Nanfi Lubogo, presented on “Cultural Implications of Screening for Intellectual and Developmental Disabilities.” Nanfi Lubogo serves as a Co-Executive Director for PATH Parent to Parent/ Family Voices of CT (PATH/FVCT), a statewide parent support network for families of children and youth with special health care needs. Ms. Lubogo presents on the cultural implications of screening for families from diverse backgrounds, the barriers faced by families and the role of healthcare providers.

To review this and all of our recorded webinars, please visit our website.

New and Improved FAN Website

Be sure to check out the new and improved, designated Family Advisory Network page on the website! Here you will find a brief overview of FAN along with a video capturing the compelling stories of the FAN representatives. There is also an addition of a resource page highlighting resources that could be of benefit for FAN representatives, including topics like policy, forms, social media assistance, and more. The site also includes a members list with emails for contacting other FAN representatives.

If you are a FAN member and have not filled out the questionnaire for the members only page, please fill it out here. If you have any suggestions or feedback for the FAN page, please contact Cassidy Penn at cvpenn@texaschildrens.org.

What is Multisystem Inflammatory Syndrome (MIS-C)

The CDC is investigating multisystem inflammatory syndrome in children, a rare but serious complication associated with COVID-19.

Multisystem inflammatory syndrome in children (MIS-C) is a condition where different body parts can become inflamed, including the heart, lungs, kidneys, brain, skin, eyes, or gastrointestinal organs. Children with MIS-C may have a fever and various symptoms, including abdominal (gut) pain, vomiting, diarrhea, neck pain, rash, bloodshot eyes, or feeling extra tired. We do not yet know what causes MIS-C. However, many children with MIS-C had the virus that causes COVID-19, or had been around someone with COVID-19.

Sick child

What to do if you suspect that your child might have symptoms of COIVD-19 or MIS-C

Contact your child’s doctor, nurse, or clinic right away if your child has:

  • Fever
  • Abdominal pain
  • Vomiting
  • Diarrhea
  • Neck pain
  • Rash
  • Bloodshot eyes
  • Feeling extra tired

Be aware that not all children will have all the same symptoms. Seek emergency care right away if your child is showing any of these emergency warning signs of MIS-C or other concerning signs:

  • Trouble breathing
  • Pain or pressure in the chest that does not go away
  • New confusion
  • Inability to wake or stay awake
  • Bluish lips or face
  • Severe abdominal pain

The best way to prevent MIS-C is to continue being vigilant about the spread of COVID-19. For more information about MIS-C and ways to keep you and your family safe during this pandemic, visit the CDC website.

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