Transporting Children With Special Health Care Needs
- CYSHCN should have access to proper resources for safe transportation as do typical children; 10 min (2019).
Patient, Family, and Provider Preparedness
17 Results related to Advocates (click to remove) or Practice Guideline (click to remove)
Children With Special Health Care Needs Face Challenges Accessing Information, Support, and Services
- Brief examining data on CYSHCN and their families; 20 min (2018).
National Care Coordination Standards for Children and Youth with Special Health Care Needs
- National Care Guidance; 60 min (2020).
Summary of June 2015 Pilot-test of Educational Handouts Starting the Preparedness Conversation with Pediatricians and Families
- Pilot Brief and Guidance; 10 min (2015).
Wildfire Resource Guide & How Disability Rights California Can Help You
- Resource Guide (2020).
CYSHCN Wildfire and Public Safety Power Outage Prep Webinar Including COVID-19 Guidance
- Archived resources with slides and recorded webinar; 15 min (2020).
Preparing for Disaster for People with Disabilities and other Special Needs
- 20 page disaster preparedness guidance for special needs persons and caretakers (2004).
Disaster Preparedness for Families of Children with Special Needs
- Parent education on disaster readiness; 15 min.
Emergency Preparedness for Children with Special Health Care Needs
- Parent guidance and resources for special needs disaster readiness; 10 min (2018).
Capacity-Building Toolkit for including Aging & Disability Networks in Emergency Planning
- 115 page toolkit (2019).
Planning for an Emergency: Strategies for Identifying and Engaging At-Risk Groups
- Guidance for Emergency Managers; 15 min (2015).
Coronavirus Information and Resources for Intellectual and Developmental Disabilities
- Site for comprehensive information, data and training State of CA; 10 min (2020).
Supporting Children and Youth with Special Healthcare Needs During COVID-19
- Video recording and slides about supporting CYSHCN during COVID19; 60 min (2020)
For Medically Fragile Children, Pandemic-Induced Supply Shortages Continue
- Supply chain article related to CYSHCN and Pandemic; 5 min (2020).
Children With Disabilities in the Context of Disaster: A Social Vulnerability Perspective
- 9 page report on children with disabilities; 10 min (2010).