Emergency Information Forms and Emergency Preparedness for Children With Special Health Care Needs (AAP & ACEP)
Children with chronic medical conditions rely on complex management plans for problems that cause them to be at increased risk for subop- timal outcomes in emergency situations. The emergency information form (EIF) is a medical summary that describes medical condition(s), medications, and special health care needs to inform health care pro- viders of a child’s special health conditions and needs so that optimal emergency medical care can be provided. This statement describes updates to EIFs, including computerization of the EIF, expanding the potential benefits of the EIF, quality-improvement programs using the EIF, the EIF as a central repository, and facilitating emergency pre- paredness in disaster management and drills by using the EIF. Pediatrics 2010;125:829–837
Family Assessment of Medical Interventions & Liaisons with the Young EMS Instrument
The FAMILY (Family Assessment of Medical Interventions & Liaisons with the Young) EMS Insturument allows for standardized collection of family and caregiver satisfaction with pediatric EMS care. It was derived via a modified Delhi method; Delphi participants included pediatric emergency physicians and EMS physicians, paramedics, and the family members of children who have required prehospital care, including children with special healthcare needs. Collecting these data can empower EMS agencies and pediatric emergency care coordinators to improve family satisfaction, and potentially the quality of care provided to children in the prehospital setting.
Patient- and Family-Centered Care Organizational Self-Assessment Tool (IHI)
Institute for Healthcare Improvement (in collaboration with the National Institute for Children's Health Quality and the Institute for Patient- and Family-Centered Care).
This self-assessment tool allows organizations to understand the range and breadth of elements of patient- and family-centered care and to assess where they are against the leading edge of practice. Use this self-assessment tool to assess how your organization is performing in relation to specific components of patient- and family-centered care, or as a basis for conversations about patient-centeredness in the organization.
(free resource - login/registration to IHI required)
Working With Patient and Families as Advisors: Implementation Handbook (AHRQ)
From AHRQ, The goal of the Working With Patients and Families as Advisors strategy is to bring the perspectives of patients and families directly into the planning, delivery, and evaluation of care. The tools that accompany this handbook are intended to help hospitals recruit and orient patient and family advisors and prepare clinicians and hospital staff to work with patient and family advisors.
Promoting Patient and Family-Centered Care in the Prehospital Setting: A Toolkit for Medical Directors
PowerPoint presentation (PDF) from NAEMSP 2018 Annual Meeting. Presented by Dr. Saranya Srinivasan.
Objectives: After attending this presentation, the participant will be able to: 1) Define patient and family-centered care and discuss its importance in the prehospital environment; 2) Describe techniques for incorporating on-scene family members into the care team and involving the patient in his/her own care; 3) Describe effective strategies for communicating with family members and patients in a manner that is clear, consistent, and age-appropriate; 4) Identify resources that can be accessed to help integrate patient and family-centered care into their own EMS system
Communicating With Children and Families: From Everyday Interactions to Skill in Conveying Distressing Information (AAP)
Health care communication is a skill that is critical to safe and effective medical practice; it can and must be taught. Communication skill influences patient disclosure, treatment adherence and outcome, adaptation to illness, and bereavement. This article provides a review of the evidence regarding clinical communication in the pediatric setting, covering the spectrum from outpatient primary care consultation to death notification, and provides practical suggestions to improve communication with patients and families, enabling more effective, efficient, and empathic pediatric health care.
Bereavement Support Resources for Families and Professionals
Presented February 20, 2019
Fatality Review personnel, caregivers, and workers dealing with bereaved families often express their need to know more about how to communicate with and provide services for families following an infant or child loss. This webinar will provide an overview of the types of infant and child loss, best practices for supporting families, expressions of grief, and how to recognize complicated grief reactions. The webinar will conclude with tips for processing our own feelings on grief and loss, vicarious trauma, and resources for self-care.