Families and Caregivers

Advocacy Patients & Families

Getting Started, Staying Involved: An EMSC Toolkit for Family Representatives

Developed specifically for EMSC family representatives, this document contains advice for families on how to work with state EMSC advisory committees and program managers to ensure all hospitals in the state have interfacility agreements and guidelines in place. (2008)

When Your Child Needs Emergency Medical Services

This tip sheet for families and caregivers provides information on how to react to pediatric healthcare emergencies, when to call an ambulance, and how to communicate with emergency care providers. (Accessed February 2010)

What is a Pediatric/Neonatal Critical Care Transport Team?

Developed by the AAP’s Section on Transportation Medicine, this document provides explanation on the need for and composition of pediatric-specific transport teams. (2008)

Safety Threats and Opportunities to Improve Interfacility Care Transitions; Insights from Patients and Family Members

by Jeffs L., et al. Patient Prefer Adherence. 2012;6:711-8. doi: 10.2147/PPA.S36797. Epub 2012 Oct 5. This paper explores family members' detected safety threats across care transitions and strategies that may improve care transitions from acute care hospitals to complex continuing care and rehabilitation health care organizations.

The cost of family-oriented communication before air medical inter facility transport

by Macnab et al. Air Med Journal. 2001 Jul-Aug;20(4):20-2. Communication with parents by transport teams can ease stress associated with transferring children to tertiary care. This paper reports on a study conducted to determine the duration of family-oriented visits prior to transfer and potential additional costs and benefits.

Should parents accompany pediatric inter facility ground ambulance transports? Results of a national survey of pediatric transport team managers.

by Woodward, et al. Pediatric Emergency Care. 2001 Feb;17(1):22-7. This paper reports results of a survey of parents and specialty transport team members regarding value of parents accompanying the pediatric patient during inter facility transport, a period of time of family unit high stress.