Patients & Families

Content in the area is sorted for patients and families. A patient is an individual who is receiving health care and family includes anyone that plays an important role in the patient's life.

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COVID-19: Guidelines for Healthcare Providers – Video-Based Telehealth Accessibility for Deaf and Hard of Hearing Patients

Outlines accessibility solutions and requirements for remote interpreting in telehealth video communications for deaf and hard of hearing patients

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Advocates & Policymakers Clinicians EMSC Stakeholders Patients & Families

Outlines accessibility solutions and requirements for remote interpreting in telehealth video communications for deaf and …

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Advocates & Policymakers Clinicians EMSC Stakeholders Patients & Families

Resources for Telehealth at Safety Net Settings

Provides resources to help support patients with limited digital literacy or limited English proficiency in using video visits.

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Advocates & Policymakers Clinicians EMSC Stakeholders Nurses Patients & Families

Provides resources to help support patients with limited digital literacy or limited English proficiency in …

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Advocates & Policymakers Clinicians EMSC Stakeholders Nurses Patients & Families

Family Voices

A national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to …

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Advocates & Policymakers Clinicians Patients & Families

A national family-led organization of families and friends of children and youth with special health …

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Advocates & Policymakers Clinicians Patients & Families

Telehealth for Community-Based Organizations Webinar Series

3-part webinar series on implementing telehealth services to address the access and functional needs of at-risk individuals. Covers; 1) services, payment and partners 2) accessibility and language access 3) barriers with homelessness and connectivity

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Advocates & Policymakers Clinicians EMSC Stakeholders Patients & Families Prehospital Practitioners

3-part webinar series on implementing telehealth services to address the access and functional needs of …

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Advocates & Policymakers Clinicians EMSC Stakeholders Patients & Families Prehospital Practitioners

Telehealth Resources for patients

A list of resources organized by topic areas for patients.

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Advocates & Policymakers Clinicians Patients & Families

A list of resources organized by topic areas for patients.

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Advocates & Policymakers Clinicians Patients & Families

Your Patient Is Logging On Now: The Risks and Benefits of Telehealth in the Future of Healthcare

An article explaining the benefits and risks of telemedicine and how the pandemic has led to rapid expansion of telemedicine.

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Advocates & Policymakers EMSC Stakeholders Nurses Patients & Families

An article explaining the benefits and risks of telemedicine and how the pandemic has led …

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Advocates & Policymakers EMSC Stakeholders Nurses Patients & Families

Community Integration and Support Resources

A online library of community integration and support resources for families and youth with special health care needs to connect to supports needed in the home and community.

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Advocates & Policymakers EMSC Stakeholders Patients & Families

A online library of community integration and support resources for families and youth with special …

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Advocates & Policymakers EMSC Stakeholders Patients & Families

Telehealth 101: Get Plugged in to Your Child’s Health

Provides resources for families on how to engage with telehealth through the medical home. Guides parents through how to establish telehealth visits with pediatrician and/or pediatric specialists.

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Clinicians Patients & Families

Provides resources for families on how to engage with telehealth through the medical home. Guides …

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Clinicians Patients & Families

Family Voices Telehealth: Barrier Busters

A list of fourteen barriers to telehealth alongside actions and resources on how to surpass those barriers.

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Patients & Families

A list of fourteen barriers to telehealth alongside actions and resources on how to surpass …

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Patients & Families

Find your Telehealth Resource Center

This website is intended to direct you to your regional telehealth resource center based on state or territory location.

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Advocates & Policymakers EMSC Stakeholders Nurses Patients & Families

This website is intended to direct you to your regional telehealth resource center based on …

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Advocates & Policymakers EMSC Stakeholders Nurses Patients & Families

Association of Maternal & Child Health Programs

A national resource, partner, and advocate for state public health leaders and others working to improve the health of women, children, youth and families, including those with special health care needs.

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Advocates & Policymakers EMSC Stakeholders Patients & Families

A national resource, partner, and advocate for state public health leaders and others working to …

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Advocates & Policymakers EMSC Stakeholders Patients & Families

Opportunities and Barriers for Telemedicine in the U.S. During the COVID-19 Emergency and Beyond

An article that examines and provides resources for legislative enablers and barriers at the federal and state level.

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Advocates & Policymakers EMSC Stakeholders Patients & Families

An article that examines and provides resources for legislative enablers and barriers at the federal …

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Advocates & Policymakers EMSC Stakeholders Patients & Families

State Telehealth Laws & Reimbursement Policies

Compilation of state telehealth laws and reimbursement policies for the 50 states and District of Columbia

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Advocates & Policymakers EMSC Stakeholders Patients & Families

Compilation of state telehealth laws and reimbursement policies for the 50 states and District of …

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Advocates & Policymakers EMSC Stakeholders Patients & Families

Pediatric Equipment Toolkit

Without the necessary pediatric medical equipment and supplies, healthcare professionals are limited in the quality of care they can provide to our nation’s children. It is thus imperative that prehospital emergency care providers, emergency department …

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Clinicians EMSC Stakeholders Patients & Families
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Hospital Prehospital Trauma

Without the necessary pediatric medical equipment and supplies, healthcare professionals are limited in the quality …

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Clinicians EMSC Stakeholders Patients & Families
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Hospital Prehospital Trauma

Patient- and Family-Centered Care Toolkit

Patient- and family-centered care is an innovative approach to the planning, delivery, and evaluation of health care that is grounded in mutually beneficial partnerships among health care patients, families, and providers. Patient- and family-centered care …

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Clinicians Patients & Families
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Advocacy Hospital Prehospital Trauma

Patient- and family-centered care is an innovative approach to the planning, delivery, and evaluation of …

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Clinicians Patients & Families
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Advocacy Hospital Prehospital Trauma

Cultural Competency Toolkit

Cultural and linguistic competence is the ability to interact effectively with people of different cultures. Culture refers to the integrated patterns of human behavior that include the language, thoughts, communications, actions, customs, beliefs, values, and …

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Clinicians Patients & Families
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Advocacy Hospital Prehospital

Cultural and linguistic competence is the ability to interact effectively with people of different cultures. …

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Clinicians Patients & Families
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Advocacy Hospital Prehospital

Coalition Building Toolkit

A coalition is an alliance of diverse groups joined together for the purpose of affecting a specific change or achieving a goal that they would be otherwise unable to realize as independent individuals or separate …

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Clinicians EMSC Stakeholders Patients & Families
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Advocacy Hospital Prehospital State Partnerships

A coalition is an alliance of diverse groups joined together for the purpose of affecting …

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Clinicians EMSC Stakeholders Patients & Families
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Advocacy Hospital Prehospital State Partnerships

Seizures & Epilepsy in Children

Seizures are the most common brain disorder seen in children. However, learning that you child suffers from seizures can be overwhelming. Here you will find a link to an episode on Seizures and Epilepsy in …

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Patients & Families
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Knowledge Management

Seizures are the most common brain disorder seen in children. However, learning that you child …

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Patients & Families
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Knowledge Management

New Checklist Aims to Help Families Communicate with the Provider About School Options

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Patients & Families
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Advocacy

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Patients & Families
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Advocacy

Family Advisory Network

In 1999, the EMSC Program created the Family Advisory Network (FAN) to facilitate the inclusion of family representatives in state EMSC programs. Today, the FAN membership includes family representatives from most states and U.S. territories. …

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Patients & Families
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Advocacy

In 1999, the EMSC Program created the Family Advisory Network (FAN) to facilitate the inclusion …

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Patients & Families
Relevant to:
Advocacy